Albinism Association asks residents not to shy from exposing their people with albinism

Narok, Thursday June 15, 2023

KNA by Ann Salaton

The Narok Albinism Association has called on parents or any relatives of people with Albinism to register them with the National Council of Persons with Disabilities in order to benefit from the government support.

The association’s chairperson Reuben Mpatiany said the 2019 census shown that there is a population of 86 people living with albinism in the county but only 62 persons are registered.

He said those registered enjoy numerous support from the National Government as they receive sun protective gears which are expensive to purchase.

Mr Mpatiany spoke from his office in Narok town office where he said there is need to create global awareness about albinism so as to promote the rights and well-being of people with albinism, and combat the discrimination and prejudices they face.

He reiterated that many people still have limited knowledge and understanding of albinism saying people should understand the challenges faced by individuals with albinism.

“Everyone, regardless of their physical appearance, deserves respect, acceptance, and equal opportunities. People with albinism often face social stigma, discrimination, and even violence due to misconceptions, cultural beliefs, and ignorance,” he said.

He called on researchers to contribute to advancing research, medical interventions, and technological solutions to improve the quality of life for individuals with albinism.

Mpatiany said the Narok Albinism Association is committed to creating awareness and to as well walk with persons with Albinism and empower them achieve their dreams.

At the same time, he called on the County Government of Narok to support Persons with Albinism by offering them job opportunities and bursaries to the needy students.

“If we are well empowered, we are positive that we can become professionals like any other citizens. We call on the county government to support our organization that cares on the welfare of persons with albinism,” he said.

Albinism is a rare genetic condition caused by mutilations of certain genes that affect the amount of melanin the body produces. Melanin controls the pigmentation of the skin, eyes and hair and people with albinism have extremely pale skin, eyes and hair.

Courtesy ; K. N. A